Posts Tagged ‘Niemann-Pick Type C’
Family Photos and Updates
Updated Family Photos
Isn’t Duncan’s face totally historical? He was being a little bugger all night not wanting to take pictures but instead play with Wendy’s son. That is ok though… we were able to get a few good ones in here. Also he doesn’t get that kind of action at home although he has two older brothers. We recently had some new photos taken by our good friend Wendy. She is so kind to do this for us!

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Challenge: I need 11 Friends
October is amongst us already! Truly can’t believe that time is flying by us.
October is the 10th annual national Niemann-Pick Disease awareness month. To help spark up and rally the troops the NNPDF has put together a “Challenge”. Niemann-Pick Type C disease is a extremly fatal disease with no positive outcome at this time so your help is greatly needed.
The Challenge:
The challenge is quite simple actually… Get 11 friends to donate just $11 dollars. Sorry to let you down as you were probably expecting something huge. ![]()
Goal:
If the NNPDF can get 111 people to get 11 contacts to each donate $11 then that would be $13,000 that can be dedicated to research. Isn’t very much is it? Think again… it all adds up.
Niemann-Pick Type C is a degenerative nuerological disease that is Fatal. It is the cells inability to metabollize cholesterol therefore causing a domino effect of nuerological problems until ultimately it claims their lives.
We ask for your support! Please share.
First Day Of School For Brisan, Parker, and Duncan
Brisan, Parker, and Duncan started school today! Although last night someone decided to sabotage half of the 46 school buses for the Grain Valley School District that prevented most of the students besides the special needs students to have bus transportation.
Brisan started 1st grade today! Parker started kindergarten and Duncan started as a peer model!
Here are some pictures to share with everyone:





