10 Years Ago Today We Received The News

Today marks 10 years when we received the devastating news about Brisan confirming the Niemann-Pick Type C diagnosis. Shortly after, a handful of weeks later, Parker was confirmed as well. That day was so sad because we drove to the hospital and learned that our sweet boy(s) were never going to have a full life but an abbreviated one. One that was going to be filled with much heartache and devastation due to the cruelness of this horrible disease. Little did we know what was truly ahead…

To watch your sons slip away from all the things you and I take for granted health wise was quite life altering. It has ran deep in multiple directions over the course of the past 10 years and will continue to cut deep for many more. Wounds that are not healed by time but by the grace of God shouldering that burden that has left our family so riddled with deep sorrow.

Brisan and Parker, me and mommy Love You! You were such incredible young men with awesome personalities. You gave us so much joy and a passion to love you even more unconditionally.

We miss you. 🙁

Jennifer with Brisan and Parker

 

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