Brisan and Parker Stults | Living with Niemann-Pick Type C

Posts Tagged ‘Birthday’

Today, we celebrate you, Brisan! 15 years old? Get outta here!

That doesn’t seem possible! Happy Birthday to you Bubbas up in heaven! I would wish you one heck of a day up there but from what I am told it’s a party that literally is out of this world!

Every year seems to become a bit more strange only because you are not here but also for the fact that you’d be morphing into a young adult in your own right. You’d be in high school right now! That seems so “odd” to say! It’s fascinating to wonder what type of life you’d would have lived thus far if the circumstances were different for you and Parker. How you would be socially with your friends… what kind of sports would you have played? What kind of other activities would you have been into? What would you be asking for your birthday now being a big 15 years old!?!?! Who would be your best friend? Would you have a girlfriend …oooooo :)?

Those are questions we will never know. They are locked away in another dimension never to be told because that simply wasn’t your life story… our life story. No matter the emotional distress that has been placed upon us, you live on forever in our hearts and we carry on life until we are called home like you were. The pain felt is so real and far greater than we can every truly realize because we couldn't carry that pain all by ourselves. Thank you for making me a father… your father. Now, you're at home with the ultimate Father. What a satisfying feeling.

I love you so very much and I know Duncan misses you a lot! I remember when he told me that “you were probably eating Cheetos” in heaven! That was very touching of him to say…

So, how are those Cheetos?

Happy Birthday, son.

August 27, 2016 – Today little Bubbas we will celebrate your 12th birthday in your memory. You’d be starting middle school and that just seems strange to even wrap our minds around the thought of that reality. That reality is also versed with the sadness that you are not physically here to celebrate. Me and mom are consistently reminded of all the memories of your personality and character. Your memories are engrained every where we look in our home.

Three simple words Brisan, “We Love You”.

The ability to physically give you a hug to express our indescribable love for you is a stark check on our emotions…

We will release 12 orange balloons and enjoy some cake. It makes us super sad and most of the time others around us are unable to see our true feelings because of how we have learned how to contain our feelings.

Sometimes at least.

Our hearts are deeply weakened with the jolting grieving we still feel. It’s a life long battle over our grieving for both you and Parker.

2.5 years have passed by which seems insane to think time has kept going on and we are inching further away from when you passed into heaven missing all the memories we took for granted early on that we could have together. We are reminded of the gift of “life” you received free of pain and suffering for you and Parker both.

Hope you have one heck of a party celebrating eternity with your bro up there!

Let's sing you Happy Birthday today!

Happy birthday to Parker & Duncan! Parker turned five this month and Duncan turned the big three!

Here is a video from their party. I was going to say short video but it is much longer :).

Thank you so much to all that came out even with all the snow! They both had a great time. Also thank you to Lee & Julie Bailes for taking pictures (will update this post as soon as we have them uploaded to get on here).

[ View on Youtube: http://www.youtube.com/watch?v=_hGZCnfvFsU&hd=1 ]

Just wanted to share a quick video from Brisan's 6th birthday party at Pleasant Valley Baptist Church in the Connection Cafe. That place is the perfect set up for entertainment!

Brisan hasn't felt well since yesterday morning. He threw up which was interesting enough considering he has a fundo placed (keep him from throwing up). Enjoy the video below.

Brisan's 6th Birthday Video