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Niemann-Pick Type C Disease
“Dementia is something usually associated with older people. However, children, teenagers and young adults can experience dementia as a result of a number of rare diseases and conditions. Niemann-Pick Disease Type C (NPC) is an example of one of these diseases, and one of its main symptoms is dementia.“
Your phone rings, the doctor says “I am sorry to tell you this” and then your life changes forever.
Brisan and Parker Stults were diagnosed in August/September 2008 with a rare genetic neurodegenerative disease called “Niemann Pick Type C Disease (NPC)” or also known as the”Childhood Alzheimer’s”. The outcome…Fatal.
We need your help in spreading awareness, funds to support research, medical needs for Brisan and Parker, and simply your prayers for our family including the small number of families in the U.S (around 75). The more people that are aware of how this rare disease relates to other common diseases, more people will be saved including our precious Brisan and Parker.
The first thought that may come to mind is what is this fatal disease? Why have I never heard of this? Is there a cure? Take a tour of our site, read our BLOG, and learn more about Brisan and Parker and this horrible disease that burdens their life.
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Brisan, Parker, Duncan July 24, 2009
“It is better to trust the LORD than to put confidence in man.” Pslams 118:8
How you can help
There are times that we are asked “what do you need” and that is a difficult question to sometimes answer. We are humbled and thankful for everything that our friends, family, and even people we haven’t met yet do to show their love towards are family. Here are two things that we always need. Diapers for Brisan and Parker and Soy pediatric drink for Duncan.
If you have any questions, comments or would like us to send you some additional information please email us at info@bripardun.com. You can also click here to go to our Contact page.
