Brisan and Parker Stults | Living with Niemann-Pick Type C

Archive for February, 2015

Tomorrow, February 23 will mark one month since Parker passed and went on to live free from his earthly body. In great joy for him and Brisan, it still leaves us very fragile and sad while we journey down this immense path of grieving. Our journey with Niemann-Pick Type C in some ways have ended but it still is a great part of our life story.

Below you will find Parker's funeral service & eulogy. We appreciate everyone that was able to make it out to celebrate Parker and show your support. We know that in just 10 months you'd be having the same thought of “weren't we just here?”. It took a lot of strength for you to come back for Parker and we appreciate that. As we continue life and attempt to find our new daily normal, it still seems strange to look over at their beds to know they are physically not here.

We want to thank the entire PV Staff for helping out with this.

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Parker Jan 4, 2015

2 Weeks ago today Parker went home to see Jesus and Brisan. I like to say he is experiencing the ultimate vacation package. We can only imagine the joy he is having with no more Niemann-Pick and his earthly inabilities that prevented him from experiencing a typical childhood. They only have a childhood to live a lifetime is a very true and stark reality now that we’ve come full circle. What can we really say other than “did this really happen”? We love you Parker! No words can accurately describe how we are feeling right now. All this in under a year. Who would have thunk it.

• Parker’s Obituary in the Kansas City Star: http://www.legacy.com/obituaries/kansascity/obituary.aspx?pid=173975546
• Our GoFundMe URL (Thank you Dawn for setting it up): www.gofundme.com/parkerstults
• Recent Kansas City Star Article by Eric Adler Jan 2015: http://www.kansascity.com/news/local/article8589614.html
• Original KC Star Article By Eric Adler Oct 2008: http://www.kansascity.com/news/local/article8589011.html 

Timeline of Events

Parker passed peacefully at home on Friday, January 23rd around 1:55pm. We were surrounded by our friends and family during this time. The room was eerily quite while Parker took his last few breaths which were few and far in between. As the morning started and progressed, so did his breathing which indicated to all of us that he was in big trouble with the reality of his homecoming in the distance future.  Read the rest of this entry »