Brisan and Parker Stults | Living with Niemann-Pick Type C

Posts Tagged ‘donations’

Parker Jan 4, 2015

2 Weeks ago today Parker went home to see Jesus and Brisan. I like to say he is experiencing the ultimate vacation package. We can only imagine the joy he is having with no more Niemann-Pick and his earthly inabilities that prevented him from experiencing a typical childhood. They only have a childhood to live a lifetime is a very true and stark reality now that we’ve come full circle. What can we really say other than “did this really happen”? We love you Parker! No words can accurately describe how we are feeling right now. All this in under a year. Who would have thunk it.

• Parker’s Obituary in the Kansas City Star: http://www.legacy.com/obituaries/kansascity/obituary.aspx?pid=173975546
• Our GoFundMe URL (Thank you Dawn for setting it up): www.gofundme.com/parkerstults
• Recent Kansas City Star Article by Eric Adler Jan 2015: http://www.kansascity.com/news/local/article8589614.html
• Original KC Star Article By Eric Adler Oct 2008: http://www.kansascity.com/news/local/article8589011.html 

Timeline of Events

Parker passed peacefully at home on Friday, January 23rd around 1:55pm. We were surrounded by our friends and family during this time. The room was eerily quite while Parker took his last few breaths which were few and far in between. As the morning started and progressed, so did his breathing which indicated to all of us that he was in big trouble with the reality of his homecoming in the distance future.  Read the rest of this entry »

Many of you are aware that on Aug. 31st we had a celebration to honor Brisan which normally would have been a big shindig for his birthday. Instead we had food, live music, and a “drive” for donations of Kleenex boxes to honor him. Our goal was 250 boxes to give to Children's Mercy Hospital to help get rid of the sandpaper we had to use during Brisan's homecoming March 3-4th. As Jennifer had stated, “No one should have to use sandpaper to wipe their nose after their kid dies”.

Petes Puffs Donations

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