Brisan and Parker Stults | Living with Niemann-Pick Type C

Posts Tagged ‘sense of humor’

So you thought this was going to be a debbie downer huh?

That phrase of the title is a little joke I like to say because every morning…like literally, we change the most incredible displays of “you know what” by Brisan and Parker. Oh yes… we're talking about shit! ha We feel so bad for them because with all the medications and all it just doesn't matter what we give them to help thicken things up. Since they can not talk or really do much for themselves, it has to be a horrible feeling just sitting there waiting for someone to change and clean them up.

We do all that we can to stay on top of their needs but can't physically always prevent it from happening. It typically happens in the morning hours and either before I go to the gym or when I come back home, let the changing diaper wars begin! The worse part is you get them all “suited up” for school and then they decide to give a present that keeps on giving! HA

It's ok. Don't get all bent out of shape because I chose to post this. Just wanted to share my sense of humor.