Brisan and Parker Stults | Living with Niemann-Pick Type C

Posts Tagged ‘Remembering’

Brisan, 5 years has felt like it has flown by! This time of year is so difficult because not only did you start your journey today, Parker has had his birthday and the same journey just a short 10 months after you. That grief is deep at the beginning of the year. It is very heightened.  Has it really been 5 years? So much life has transpired since then.

Being our last snow day of that March 3, 2014 school year, there are moments that we remember so much more in detail than others. The very next day for you, it was your homecoming to meet our King, Jesus in the early morning hours of March 4th. We can only hope you are living like a “King” in your own right being free of Niemann-Pick Type C. You are missed dearly my little Bubbas!

The void is a great chasm that having you and Parker no longer here has a piece of us feeling broken and empty. Because the cross has spoken, we are forgiven which gives us the opportunity to seek Him directly. I cannot put into words but my/ our hearts are broken into millions of little pieces but we get put back together by His love for us. Brisan, you are experiencing the ultimate promise. I can't wait until we get to be with you again. Duncan misses you, champ. You never had the chance to meet Rubee but I know she would have endeared you!

We stopped by to visit you and Parker a couple of days ago. The day we laid you to rest was like no other. A very surreal moment.

These moments aren't taught in preparation for burying your children and how to manage the weight of grievance it bares. We all are faced with non-seeming pivotal moments that in the midst of the battle you cannot see the impact of your decisions very clearly. It requires a faithfulness to lean on others that have our best interest in Jesus's name for our eternal souls and not be fooled by our earthly thinking.

I am thankful for all of our friends and family that have responded in love and kindness towards my family. People ask how we “get through it” and the simple answer is all of you praying and lifting us up to Jesus.

I believe you when you would say

Your hand will guide my every way?
Will I receive the words you say
Every moment of every day?

Well I will walk by faith
Even when I cannot see
Well because this broken road
Prepares your will for me

Help me to win my endless fears

You've been so faithful for all my years
With one breath you make me new
Your grace covers all I do, yeah, yeah, yeah yeah yeah

……