Brisan and Parker Stults | Living with Niemann-Pick Type C

Posts Tagged ‘Parker’

Life has been extremely busy for all of us. Brisan and Parker have been attending summer school a few days a week now and should be down soon. Duncan has been really growing up. He will be a peer model coming next month at school! Jennifer has been plugging away at school! Read the rest of this entry »

It's been busy in the Stults household. To say the least that is. Well heck…when isn't it? We found out that Duncan was accepted as a peer model for Early Childhood at the Grain Valley School District a few weeks back. That is so exciting for him! He really has been urning to play with his “friends” he calls them.

Mr. Parker and Mr. Brisan have been playing “who can throw up the most” game. It must be some weird college game or something. Maybe it was from watching Americas Next Top Model? (It's ok to laugh at my silliness). All the vomiting has thrown a damper into pretty much life. That would mean changing feeding schedules, school, and etc. As of the time I write this post it has settled a tad down.
Read the rest of this entry »

Last July 2010, my parents (Mike) helped organize a fundraiser for Brisan & Parker. During that time through mutual friends they were introduced to Hazel Kinder who lives in Columbia, MO. That is about 1-1.15 hrs from Kansas City. During the late 80's through the late 90's she lost 3 of her son's to Niemann-Pick Type C disease.

I can't imagine going through this whole situation during that time when the internet was just getting started and networking to find support with other families. We are thankful that she wanted to be apart of our story and journey.

KOMU.com out of Columbia, MO did a small story on the event.

Date: January 15, 2011

Place: Lee’s Summit North High School Field House/ Concession Stand

Time: 12 p.m. – 3 p.m.

Goal: To host a carnival type event to raise money for the Stults family

Lexxi & Kara have graciously organized this fundraiser for our family. They are incorporating it into their DECA marketing project for school and our both seniors at Lees Summit North High School.  Out of all the other things they could have done they choose our family. It all was because my mother had put a flyer out early summer for a fundraiser they held in Lees Summit, MO and they happened to come across it.

We encourage you to attend and bring your family. This is a family oriented event and with the social connections that kids have in school this will be a FUN and great event to be apart of. Please come out and have a great time!