Posts Tagged ‘Brisan Stults’

October is amongst us already! Truly can’t believe that time is flying by us.

October is the 10th annual national Niemann-Pick Disease awareness month. To help spark up and rally the troops the NNPDF has put together a “Challenge”. Niemann-Pick Type C disease is a extremly fatal disease with no positive outcome at this time so your help is greatly needed.

The Challenge:

The challenge is quite simple actually… Get 11 friends to donate just $11 dollars. Sorry to let you down as you were probably expecting something huge.

Goal:

If the NNPDF can get 111 people to get 11 contacts to each donate $11 then that would be $13,000 that can be dedicated to research. Isn’t very much is it? Think again… it all adds up.

 Donate $11 Here

Niemann-Pick Type C is a degenerative nuerological disease that is Fatal. It is the cells inability to metabollize cholesterol therefore causing a domino effect of nuerological problems until ultimately it claims their lives.

We ask for your support! Please share.

Brisan and Parker waiting on bus 2011

 Donate $11 Here

The Doctors TV Show

Image via Wikipedia

Recently this week Kristen and Fernando Lopez attended a taping of the hit TV show’s Season 4 premier called “The Doctor’s”. There son Gavin has Niemann-Pick Type C disease like Brisan and Parker. We consider them good friends and are so very excited they were able to nab this opportunity. This was an awesome opportunity for our disease community to help spread awareness about this rare disease and hopefully attract the right people that help change the course of this. Below are a few videos from the show.

E.R. physician Dr. Travis Stork explains how Niemann-Pick Type C disease affects the brain. Read the rest of this entry »

Jenn took Brisan back into the ER this evening. The last few days he has been very restless. He just had that look in his eyes that something wasn’t right. This evening his skin was looking very “marbled” and his knees had swelling with redness (very warm to touch). Jenn stated this was similar look he had when he went into septic shock. Whatever infection he has been fighting (blood related) sure is giving everyone a run!
Read the rest of this entry »