Brisan and Parker Stults | Living with Niemann-Pick Type C

Archive for March, 2014

Brisan + Duncan + Parker | November 2013

We have had a few requests for the video of the service and also a copy of the eulogy that I gave at Brisan's funeral. What is most important to note is I had an abundance of people lifting me and our family up that knew I was going to speak. The majority of our support and family/ friends did not know this. I asked the Lord to help me, to give me strength and courage, and to guide me to deliver a great message. More importantly… get through it!

So glad that I had the opportunity to do so BEFORE all the video's and songs; otherwise may not have been able to finish and plan c would have been in affect. I so badly do not want to take credit. I just wanted God to use me.

The “Moment”

Over the past 4-5 years, I've had a handful of times that this moment of inspiration and excitement played through my head. I spoke about this in January to someone and before that it was at PV Family Camp last May 2013 that I “felt” motivated. That “moment” was always centered around on a stage, in front of a crowd, but the message was fuzzy. Wasn't for sure what that meant other than the “outcome” of the message was meant to be inspiring and motivational. Another one of those moments of…I did not think this was the moment (Brisan's Funeral). When we were in the planning meeting with our pastor, he asked “do you have a good friend or someone that can do Brisan's eulogy?”. With all of us looking around, I finally spoke up and just shared that “vision” (dislike saying that word in this situation). With talking through it, it seemed that this was my mission at hand. Later that night I started to put the “pen to the pad” or in the 21st century terms… the “finger to the ipad”.

Funeral Service For Brisan

(around the 12 minute mark the service begins) (**Feb 2015 I had to update the video. I've updated the below. I had to remove the intro of the video)

Services were fantastic. There are soooooo many people to thank! Beautiful outcome, weather, and just about everything minus Brisan physically being here. With everything said, more than ever will myself and our family continue to need prayer and support. Sadly we have round 2 with Parker. I just hope his time isn't as quick.

Download: Word Doc of Eulogy Read the rest of this entry »

Brisan Michael Stults | August 27, 2004 to March 4, 2014

Many of you know that Brisan flew into the arms of Jesus at 1:55 am last Tuesday morning, March 4, 2014. We wanted to share some of the events that Monday with all of you.

Monday March 3, 2014 started off like most days in our household: me coming home from the gym getting Brisan, Parker, and Duncan ready for the day. I put Brisan in a red long sleeve shirt with gray sweatpants. Unlike most March days, we had a snow day so they were out of school.

Monday Morning

I came home a few minutes later than normal because of the snow day and not having to rush around right before 8am and that song Hungry Eyes by Eric Carmen was just playing on the radio. A kind of song that you remember. I started to take care of the boys such as diapers, meds, feeds, and etc. Brisan was in a great mood as you will see or have seen in the video I so gratefully took that morning…. even laughed on camera! I told the Lord thank you after I hit stop. It is rare for us to get him on camera. They were watching scooby doo!

Video of Brisan

I proceeded to get him dressed and place him in his “old man chair” (mini recliner). A normal thing for us to do because he wouldn't try to “jump” out like Parker does. Later that morning he had a normal seizure then followed by a violent seizure.. convulsion like. Shortly after it followed by another just like it. We both looked at each other (Jenn) and was like…we've never seen this before. It was scary looking. Read the rest of this entry »