Brisan and Parker Stults | Living with Niemann-Pick Type C

Well good news…Brisan and Parker will have their Desmopressin (DDVAP) infusions until the end of the month (for their bleeding problem). Our infusion company and our hemoc doctors are working very hard to find the “goods’! We don’t know what will take place after the beginning of the year though. Still good news.

The boys have been great this week. Nothing major to report (thankfully). Duncan did have his evaluations to see if he would qualify for ECSE (school). He has been progressing much better so it is a 50/50 shot we get in the door we are guessing.

Thank you for all your support.

Related posts:

1. Update 11-17-2010
2. Parker’s Surgery Update 3-24-10
3. Parker Update | Brisan’s Pre Opp Appointment
4. Update on Brisan and Parker
5. Next week we’re heading to the NIH