Next week we’re heading to the NIH

Parker and Brisan are doing better. Parker seems to be walking in an improved state.  Wednesday Duncan decided to jump on the couch and broke Jennifer’s nose. She isn’t feeling well and has an appointment with the ENT on Monday to see what can be done to resolve the issue. She posted the x-rays on her Facebook profile page.

April 21-24 we will have our last visit to the NIH for the NAC drug trial. That Thursday will be used to provide insight into Brisan’s sinuses and polyps along with the finishing touches of paperwork / examinations they will perform. Nothing major expect 14 tubes of blood! In May we will start Zavesca back up but I am sure we will talk with Dr. Porter more about it to get his insight.

Brisan and Parker’s port-a-cath sites are looking good. Monday will be the first time they can access Parker’s site for his infusions. They also took Parker off AMICAR and gave him another drug in its place.

Share
  • Grammy Carnes

    We can only hope and pray for good news from Dr.’s on
    Brisan’s nose/sinus polyps……and so glad Parker is walking better.
    Maybe the Zavesca will make some differences.
    Love to everyone………Lets hope Jennifer gets some
    positive inf from ENT Dr. on her nose…
    Love
    Grammy

Sharing is Caring!
Brisan’s Funeral

Location

Pleasant Valley Baptist Church
1600 State Highway A
Liberty, MO 64068

Map Directions Here

Services Times

Visitation
Thursday, March 6th -- 5:30pm - 7:30 pm

Funeral
Friday, March 7th --10 am

Would you like to help?

Donations can be made to help with any expenses to:

Pony Express Bank
c/o Brisan Stults Memorial Fund
215 N. 291 Hwy
Liberty, MO 64068
P: 816.781.9200

Online



Donate
Email Address First Name Last Name
Donate Here

Donate to Brisan and Parker

Make a Donation

Donate to our 501(c)3 Non-Profit


Donate to Niemann-Pick Children's Fund
Categories
Archives