Brisan and Parker Stults | Living with Niemann-Pick Type C

Archive for the ‘Videos’ Category

Last July 2010, my parents (Mike) helped organize a fundraiser for Brisan & Parker. During that time through mutual friends they were introduced to Hazel Kinder who lives in Columbia, MO. That is about 1-1.15 hrs from Kansas City. During the late 80′s through the late 90′s she lost 3 of her son’s to Niemann-Pick Type C disease.

I can’t imagine going through this whole situation during that time when the internet was just getting started and networking to find support with other families. We are thankful that she wanted to be apart of our story and journey.

KOMU.com out of Columbia, MO did a small story on the event.

Happy birthday to Parker & Duncan! Parker turned five this month and Duncan turned the big three!

Here is a video from their party. I was going to say short video but it is much longer .

Thank you so much to all that came out even with all the snow! They both had a great time. Also thank you to Lee & Julie Bailes for taking pictures (will update this post as soon as we have them uploaded to get on here).

[ View on Youtube: http://www.youtube.com/watch?v=_hGZCnfvFsU&hd=1 ]

Date: January 15, 2011

Place: Lee’s Summit North High School Field House/ Concession Stand

Time: 12 p.m. – 3 p.m.

Goal: To host a carnival type event to raise money for the Stults family

Lexxi & Kara have graciously organized this fundraiser for our family. They are incorporating it into their DECA marketing project for school and our both seniors at Lees Summit North High School.  Out of all the other things they could have done they choose our family. It all was because my mother had put a flyer out early summer for a fundraiser they held in Lees Summit, MO and they happened to come across it.

We encourage you to attend and bring your family. This is a family oriented event and with the social connections that kids have in school this will be a FUN and great event to be apart of. Please come out and have a great time!