Brisan and Parker Stults | Living with Niemann-Pick Type C

Parker, aka Mr. Stinky…. today we are celebrating your 10th birthday without your physical presence but with a flood of memories of all the happy times and the sad times where we had to watch you suffer. At times it is hard to celebrate because selfishly… we would like to be able to hold you.

Mom, Dad, Duncan and Rubee hope that you guys are having a blast today! Your innocence while on earth was a blessing in many ways. Now you get to live out the promise that God has promised all of us that at times seems so far fetched because we just cannot imagine the infinite glory it will be. We also hope that you and Brisan are able to soak up all the activities that makes your heart full!

Your huge smile and dipples brought smiles to all! Your feisty attitude with that occassional teeth grinding when mad, really allowed your personality! We sometimes wondered how you would really react if Niemann-Pick Type C wasn't in your life. We thought this often about a lot of things for you both.

Your passing on January 23, 2015 was the “bookend” for you and Brisan’s physical story yet your story really just began. Your legacy and story will carry on for many years influencing many families when they read you and Brisan’s struggles. Although great pain in many eyes, you left a gift of hope and ultimate compassion. A true testament to the real peace that God provides, you looked like you were sleeping that day. No more pain, no more struggles and yet he calmly called you home during that time. The final minutes of earthly life showed us HIS presence only promotes peace and love. Your beautiful eyes were shown to us one last time.

Last year we had a Charlie Brown party for you where you seemed to be playing “possum” while you slept during it all. Shortly after everyone finally left you woke up and seemed well rested! We know you are a stinker! That is one of many reasons you’re our Mr. Stinky!

Little did we know that your time was so imminently near… just 10 months after Brisan passed. We know you missed him. Our hearts wept deeply and secretly inside because we knew that not many birthdays were left all while we were grieving for Brisan.

Thank you for being our son, a brother, and a friend to all whom were able to meet you. We love you Parker. Happy 10th Birthday, your first in heaven! Your celebration of life has to literally be “out of this world.”

We will celebrate you this weekend coming up big guy!