Brisan and Parker Stults | Living with Niemann-Pick Type C

Jennifer took Brisan to the ER on August 31st because he just wasn't himself. He had thrown up a few times which he shouldn't be able to with his fundo in place. They admitted him late in the night and he literally slept for 4 days. Over that time he developed a fever, rash, body/face swelled, very large spleen, and was completed depleted of energy. Keep in mind that although he has Niemann-Pick Type C he can develop other health challenges in conjunction. We certainly are aware of the neurological breakdown taking place in Brisan.

After a battery of tests for almost everything imaginable under the sun we still never received an answer to what may have caused this. Since we haven't seen Brisan in such this state before we couldn't help to wonder what did this turn of events  have in store for us. Typically when we have a big health issue he has shown digression afterwords.

He is feeling better now. Still a bit wobbly walking around. We are shooting to send him back to school on Monday :). On other notes Jennifer was accepted into Grad School. Parker has been having a good start to his school year and seems to enjoy it much more so far. Lately though he just isn't sleeping. Duncan has been his cute little self. The kid is just developing more everyday! In some ways it is like having our first kid!

Thank you to each and every one of you for lifting us up to the Lord. We will need the continued support to just deal with life on top of the boys' situation.