Useful Links
- APMRF
- Austrailian NPC Disease Foundation
- Bio Med Search
- CCNNPDF
- Clincal Trials at the NIH
- Dana's Angels Research Trust
- Hide & Seek Foundation
- Join Our Facebook Cause
- Links to Other Familes
- Niemann Pick Assoc-Argentina
- Niemann Pick Disease Group – France
- Niemann-Pick Children's Fund
- Niemann-Pick Disease Group (UK)
- NNPDF
Bed Time | July 2010
At Wash DC | Jan 2009
Bath Time | July 2008
Pictures
Guestbook
We love getting messages! Thank You to all that have been so wonderful to our family.
To view entries from old site: Posts #1-3 & Posts #4-33
21 Responses to “Guestbook”
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very good page.
they dont lose the hope.
Marcelo
I love the new pics. As always, you all are in my heart, mind and prayers.
Thanks Kara! We still have more pictures to put up but this will give us a start. Certainly more flexibility than the original BriParDun site! Hope all is well. When is the next wine tasting event for networking. I was telling Jennifer about it.
Thanks! Keep up the great work! I will add your link to our site and http://www.npcfund.org! Could you add ours to yours?
The site is coming along very nicely…pictures and videos are great! I hope all is well with you guys!
It is so hard to think that your boys have gone through so much at such a young age. You, your boys and your whole family will be in my prayers every second of the day…I am praying for a miracle for your boys!
Thanks Debra! Yes it is very hard to put in perspective all that they’ve went through thus far. It all almost seems normal because we haven’t known anything else.
Hey good inf. and well put.,
I am still learning……the link that shows alex Baldwin and leslie lysome is especially informative
http://www.npcfund.org/about-us.html
I would encourage others to view it and the rest of the site…….
You all know how much I love you and these boys are my heart!……our prayers are for you daily……for that
cure, for wisdom for Mike and Jenn as parents for these
boys, that always love, kindness, compassion and that the boys grow up with joy in their lives …….
keep up the good work. God is faithful and His eyes
are always watching over you.
Love you
Grammy Carnes
GREAT and AWESOME pictures of Brisan graduating from pre-school You did well Bubby. i love you.
Ma
awesome job, Brisan on graduation! you did well! i love you.
All of my team and many others are supporting you and your family in thoughts, words and deeds. It is my prayer and my teams mission to get the word out in every form we know how to. Keep your hope Mike and Jen…these boys are precious in all of our eyes!!!! And Mike, our short conversation and knowing what I have learned since…you are one AMAZING INDIVIDUAL…these kids couldn’t have asked for a better family to be raised in….
Much love
Dan Henderson
Dan,
Thank you so very much for your support!!!!!!!
Mike
Hey is amanda im the cousin of the boys. and i love this sight. I love you guys so much and if theres anything i can do i will. anyways i love you so much and i would love to see the boys more often and i will try to come to every event.. Love you all bunches..
Love always
Amanda Allen
Hey Amanda!!!! Thanks for leaving a comment on our site! It was good to see you all as well! Love you too!
thanks, but yah just call us if you guys need anything
Thank you, Mike, for sharing your family’s inspirational story with me on the flight back home from DC. You have such an amazing family and your boys are absolutely beautiful! I am sending all my prayers your way!
Rachel, Thank you for allowing me to share and listening! We appreciate your support!!!
Dear boys
I miss you and try to keep up will all that is going on with you. I hope you had a great birthday Brisan! Lots of hugs coming your way. Stay healthy and enjoy school!
Ms Karien
Dear boys and family
Thank you for the beautiful Christmas card! It made my day. You look so handsome. Hope you are all on the good list for Santa this year and enjoy all the snow up there in Kansas City. I kind of miss it around Christmas time:(
Keeping you all in my prayers
Ms Karien
Brisan, Parker and Duncan, I just wanted to let you know that you are the cutest little guys ever and I have heard a lot about you from my friend Danielle. Next time I come to Medford to visit her I will bring my chubby chihuahua zoe and my new mini puppy Sketch (who looks like a little pony)and we can have a play date!
<3
Nastasha
Michael and family,
I am the secretary at Gill Memorial Baptist Church in Marshall, Mo. I grew up in the Liberty/Gladstone area and have family members that still live there. I was reading the World & Way Baptist newspaper and came across the wonderful article about you and your family. Tears came to my eyes as I read, and re-read about your special little boys. I then spent an hour on your website, trying to learn about this awful disease that is taking your children. May God bless all of you and keep you safe in his protective arms! I know you have touched me today! Cindy