Brisan and Parker Stults | Living with Niemann-Pick Type C

We arrived safely in DC yesterday afternoon on a beautiful rainy day (not really). It seems every time we come it is either raining or snowing. Today’s weather will be in the 60′s so that should be good!

Overnight Parker had a bloody nose. We love leaving DNA behind when we come to visit. Today’s mission is to see if they can help us with a solution with Brisan’s sinus issues. Most of you that have seen him can see that his right eye is becoming severely infected because of the polyps in his sinus cavities.

We also get to meet some other NPC families which will be exciting!

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